An update: The good, the bad and the ugly

I’m about 7 months post Round 1 of Lemtrada treatment. At this point I can unequivocally state the following:

• I haven’t had a relapse (evidence-No worsening symptoms, no new symptoms)

• My lymphocytes have slowly been replenishing themselves (evidence-I am at 1.0 as of last month around this time)

• I haven’t had any infections or severe side effects (evidence-no emerge visits)

• I have greatly improved my ability to work (evidence-I am working a FULL work week which I haven’t been able to do in years)

• The side effects from the treatment have significantly improved (evidence- fatigue is still a problem and appetite is wonky but I no longer feel like I’m going to…you know die 😬)

• Overall I have more energy than I have had in years (evidence- some days I can actually do stuff after work, at work I can actually keep up with the youths)

• My life hasn’t returned to ‘normal’ (evidence-I’ve been advised to not get tattooed until…) 

• There is a lot of uncertainty (evidence- will I have a relapse? Will the treatment be successful? Will I get one of the ‘bad’ side effects from treatment?)

• I still fucking hate getting blood work done (evidence-I still need to lie down every month while the lab tech draws my blood 😳)

❤️ Angela

10 thoughts on “An update: The good, the bad and the ugly”

  1. I am so glad to hear that you are feeling so good! Sounds like the new medicine is working in your favor!! I really hope the blood work eventually gets easier for you, I know it can be difficult but you get tattoos, right? Is a tattoo easier than blood work?
    I am so happy to hear you have more energy and that work is going well! It is so good to hear good news and all the good is happening to an amazing person that has such a big heart!!!

    Much love, Alyssa

    Liked by 1 person

  2. Living large, Angela :>)

    Doing fine actually. Maintaining the status quo. My latest thing is I’m trying to lose a few lbs, but am sorely lacking motivation. I’m maintaining, which I can’t complain about, but would like to lose 10 so I can pig out during the holidays. Looks like that will be a stretch as best. How are things with you?


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