A very wise friend said to me today ‘If the term ‘MS’ was replaced with ‘Cancer’ would the reaction be the same?’

It’s baffling how in a country with the highest rates of MS in the world

Approximately 100, 000 people living with it

I know it doesn’t seem like that many people in the grand scheme of things

And maybe that’s why

So few people understand the depth of its disease

And the suffering and difficulties that people with MS encounter daily

Family doctors don’t often have a lot of knowledge around MS and are often little help as nice as their intentions can be

So we are often left to educate them

Can you even fathom that?

How scary and lonely a road it is when you’re the one who has to educate your doctor?

I won’t even begin to describe how little the average person has an understanding of Multiple Sclerosis

Your spouse, your kids, your siblings, your friends

You have to be the one to explain to them all the little nuances of a disease that you yourself don’t even fully understand

Employers have zero understanding of a disease that is listed as a ‘disability’ under the Canadian Human Rights Code

Baffling

It’s brutal to think of all the times people have reminded me that ‘your employer is just doing their job’

So like that wise friend of mine said

Imagine this whole ordeal of mine with work

Picture it in your mind

The HR person

The supervisor

The member of management

And you

And change all the times I’ve said ‘MS’ and replace them with ‘Cancer’

You have ‘Cancer’

The person at the centre of this whole debacle is fighting against ‘Cancer’

How much does the situation change?

Does your employer still question your ‘capabilities’?

Blame you for an undefined negative impact your attendance has had on the program?

Does your employer harass you?

Send you multiple emails on your sick day?

Constantly whip out your attendance stats over the last two years as ammunition?

Two years that you’ve been battling ‘Cancer’?

You’re in a fight for your life with a disease that is taking over your body

You want to go to work

And do the job you love doing

And now you have to fight against the people that sign your paycheque

The very people that question your capabilities

Can you imagine this?

But wait

You just have Multiple Sclerosis

And now

No one cares anymore

After all

You don’t ‘look’ sick

Advertisements

6 thoughts on “A very wise friend said to me today ‘If the term ‘MS’ was replaced with ‘Cancer’ would the reaction be the same?’”

  1. It really is sad that SO many people do not understand anything about MS and they do not care to. Until it effects themselves or someone close to them they do not put forth any effort to under. Employers and HR staff just do not have the common sense to know it is a disability and it is not legal to discriminate. I do my best to educate people I am around, but it is a waste of time because they do not really care to know anything.
    I am still in utter shock that MS is so abundant in Canada and the employers there do not act or care anymore than they do in the states. I always thought Canadians were kinder that those in the states.
    Sending you love and comfort my dear!!!

    Liked by 2 people

  2. I totally agree, and not just with MS but other conditions too that are invisible. Often there’s such a lack of understanding, lack of awareness raising, no big research and money raising drives, just negative stereotypes and associations. Very thought-provoking (and I think spot on) post. xx

    Liked by 2 people

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s