It’s baffling how in a country with the highest rates of MS in the world
Approximately 100, 000 people living with it
I know it doesn’t seem like that many people in the grand scheme of things
And maybe that’s why
So few people understand the depth of its disease
And the suffering and difficulties that people with MS encounter daily
Family doctors don’t often have a lot of knowledge around MS and are often little help as nice as their intentions can be
So we are often left to educate them
Can you even fathom that?
How scary and lonely a road it is when you’re the one who has to educate your doctor?
I won’t even begin to describe how little the average person has an understanding of Multiple Sclerosis
Your spouse, your kids, your siblings, your friends
You have to be the one to explain to them all the little nuances of a disease that you yourself don’t even fully understand
Employers have zero understanding of a disease that is listed as a ‘disability’ under the Canadian Human Rights Code
It’s brutal to think of all the times people have reminded me that ‘your employer is just doing their job’
So like that wise friend of mine said
Imagine this whole ordeal of mine with work
Picture it in your mind
The HR person
The member of management
And change all the times I’ve said ‘MS’ and replace them with ‘Cancer’
You have ‘Cancer’
The person at the centre of this whole debacle is fighting against ‘Cancer’
How much does the situation change?
Does your employer still question your ‘capabilities’?
Blame you for an undefined negative impact your attendance has had on the program?
Does your employer harass you?
Send you multiple emails on your sick day?
Constantly whip out your attendance stats over the last two years as ammunition?
Two years that you’ve been battling ‘Cancer’?
You’re in a fight for your life with a disease that is taking over your body
You want to go to work
And do the job you love doing
And now you have to fight against the people that sign your paycheque
The very people that question your capabilities
Can you imagine this?
You just have Multiple Sclerosis
No one cares anymore
You don’t ‘look’ sick