Round 2, Day 1 Down of Lemtrada treatment
The day got off to a rocky start as I woke up at the crack of my ass (aka 4am)
After taking the dose of Prednisone, I started experiencing intense leg cramps or spasms
Aside from that, Joey was my first guest to join me today and we headed out to the clinic around 745AM
I was disappointed to find that Sharmela was off on mat leave but was sooo grateful to have the awesome Amanda in her place
Amanda was a straight shooter and her calm demeanour aided my own to chill the fuck out
There were a few glitches in the beginning with a faulty line in that just spurted some fluid and has left a grotesque and slightly painful bump on my hand
Second shot went in fine
Did the usual Solumedrol dose
Yippee more steroids
And then an hour later onto Lemtrada which is delivered intravenously over 4 hours
Lunch was a tough sell and my appetite was wonky at best
There were a few scares
Namely my high blood pressure and accelerated heart beat
And the muscle cramping in my legs was at some points unbearable
But my good nurse doped me up and got me through it
We stayed for the roughly 2 hour observation time afterwards to ensure no major reactions occur
And thankfully they didn’t
Amanda wrapped me up and left the port in for easy access (😬) tomorrow morning
But all I feel is like the warrior I am wrapped up and ready for more battle
We got home around 530PM this evening
It was a long ass day and we were both proud of ourselves for having pre made dinners to be heated up over these next few days
I’ve now eaten a bit more at dinner taken more antivirals and can honestly say I rocked the fucking shit out of this first day
I was tired, cranky and spastic and I still made it through (blood splatters, trapped IV tube blood and all)
Yay fucking me
I want to leap on trees and scale gates and scream so loud that I lose my voice because I discovered something in me
Maybe only a mystery to me
But
I know I can fucking do this
I’m going to take more drugs cause I ain’t no hero and like Samuel L Jackson urges your damn kids to do, I’m gonna take his advice and ‘go the fuck to sleep’
👊✊🏼✌️
I did not doubt you for even a second! I knew you could make it through this exciting event!!!! I am super proud of you and so glad you had dinners ready to heat up! I hope you get a good nights sleep and tomorrow goes great!!!!
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Thanks for reading along Alyssa! You’ve been so supportive and encouraging and I really do appreciate it!
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No problem! I wish there was more that I could do for you! I hope you are having a nice and relaxing weekend!!
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Thanks Alyssa
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You truly are a WARRIOR! And you can totally do this! Glad day 1 is done. 33.3% of the way there!
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You go girl! I can tell you some stories about needles and stuff spurting, but will save that for a later time. Sleep well
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Hard pass for me! 🤢
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