Been in bed for a few hours and feeling drained to the bone but I wanted to jot some notes down.
Today was day 3 of Round 2 and the end of the treatment cycle. Hoping I will be among the many who haven’t needed a third cycle.
Today was comparatively easier than the last two days and had my awesome zen and calm sister by my side today who was a super caretaker.
I had one major spike with blood pressure where it went up to 160something over 111. But managed to make its way back into safer territory.
I was nicely drugged up for most of the morning into the early afternoon and felt little more than the Sahara desert of dry mouth and throat.
While doing my infusion I met a fellow MSer who was getting Tysabri treatment (which I was ineligible for due to previous exposure to a virus). This Misfit of a warrior has been battling MS since she was 17 and has been through her hurdle of using a walker and I’m sure much more but has since done well with Tysabri. Wishing her and everyone else on this weird fucked up ride of MS, nothing but strength, courage and good vibes.
My nurse Christine today was excellent as were the other two and I even got to see Nurse Amanda who rocks!
I hope this made some sense as I’m pretty doped up at the moment. 🤤
I won’t even begin to describe how many pics had to be taken of me throwing up the round 2 day 3 hands. I just couldn’t get it right! You’re welcome world!
But I just wanted to say I fucking did it! I did it! I can’t believe I did it and yet here I am with the bruises and soreness to prove it.
All of you in real life and in the cyber world have made my journey somehow a little easier, a little less lonely and have given me a whole lot of support. Much love and respect to you all.
Although there is a slight possibility that this may be the drugs speaking or just allowing me to be more honest, either way take it while you can. 😂
Day 3 has made for an achey, tired and woozy little warrior.
Who is off to bed in hopes of deep blissed out sleep and with whispers of hope on her tongue for a better tomorrow.