‘At Times, Our Own Light Goes Out And Is Rekindled By A Spark From Another Person.’ Albert Schweitzer

Dear David (from Gerstein Crisis Centre)

It’s taken me four days to finally be able to compose this letter.

Not because I didn’t care to but because I became too emotional whenever I thought about your kindness towards me during my short stay at Gerstein.

You were the first person during my ordeal who did not see someone who was ‘weak’ and ‘needy’ but instead you saw someone who was tired of fighting so hard.

Someone who just needed a safe place to land.

You gave me that.

From the very minute I stood in front of the office doors as a crying hot mess, until we had talked long enough for me to enter a sleep-like.

state.

You threw me a lifeline.

You listened.

You talked.

You joked.

You laughed.

You related.

You made me feel heard and understood, and there are not simply enough words in the English language to convey my complete gratitude towards you for that.

So from one panic attack sufferer to another…

In words I know you’ll understand best.

I’ll just say:

I’d lay down in the snow with you, until your panic attack passes. 😊

Forever grateful,

Angela

PS if anyone knows him or how to get in touch with him let me know

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‘When The Soul Suffers Too Much, It Develops A Taste For Misfortune.’ -Albert Camus

On a shitty day, I’ll gamble with myself

‘ If even one good thing happens to me today, I will be okay.’

At first glance it seems the odds are stacked in my favour

Only I’m not a very good gambler

And I find myself on the losing end of that bet more often than I’d care to admit

One

Good

Thing

It doesn’t seem like much

Nor does it seem like something that would be hard to come by

But when you’ve stopped working

Your world becomes frighteningly small

Leaving you with less possibilities for something

And there’s only so many times you can count your dogs something good that happened

Without starting to feel like you’re lying to yourself

Maybe it’s the combination of illnesses that I carry

That make it harder and harder to be on the winning side of that bet

Maybe it’s luck

I don’t know

I think I’m one of those people that can lament that if it weren’t for bad luck, they’d have none at all

So I like calling it a bet or a gamble

Because when you’re calling it hope

And you lose….

It’s just so much more disheartening

‘I Dream My Painting And Then I Paint My Dream.’ Van Gogh

So I did something today

That I hadn’t been able to previously accomplish

I finished an audiobook

No big deal there

That happens very frequently

I should clarify

I finished an audiobook where the main male character has Multiple Sclerosis

I know it might not seem monumental to you

There was no forewarning about his diagnosis in the description of the book

Because in all likelihood

I wouldn’t have given it a listen

I hate to admit that in the past I’d been unable to continue to listen when I got to the point in the story where a character was revealed to have MS

In that instance

I stopped cold turkey

Right then and there

This time around

I had two hours left in an eight hour book

It wouldn’t have been strange for me to not finish listening

There have been many times

Where the romance audiobook character said the word ‘gosh’ too many times

And with only minutes left

I just couldn’t do it and ended that listen lightening fast

Anyway this time

I got to the part where it is revealed the character has MS

I paused the audiobook for a minute

Maybe more

I called Joey to come into the room

Explained the situation

Made him listen to the line

And then

I did something unlike myself

I kept listening

There may have been some tears

The female characters

Not my own

Well

A little my own

But whatever

More importantly

The story kept going

It didn’t end there

With him in a hospital

Talking medical shit with a doctor

The story continued for two hours

Two hours where I continued to listen

I could have stopped

Deleted it

Found something else

And yet I listened to the whole story

Sometimes with tears

Sometimes not

I kept going

I listened until the very last second

I listened until the credits rolled and the audio went silent

And honestly

I can’t think of anything more fucking poignant

‘There Is More Evil In The Least Sin Than In The Greatest Affliction.’ T. Brooks

Some days my damaged eyes feel as weary as my burdened soul

Some days it feels like I carry the world on shoulders that are tensed with anxious thinking

Some days the world feels as chaotic and unpredictable as the disease discarding lesions on my brain

Some days I feel so jittery that my nerves feel like they’re fraying and uncovering more than just damaged myelin

Some nights I lay awake not able to sleep even though my days are consumed by an overwhelming fatigue

Some nights it feels like electricity is coursing through my limbs and extremities

Some nights I feel like not waking up in the morning still wouldn’t be enough to get rid of all that’s wrong

Sometimes there are moments when I think that even a lifetime isn’t enough time

Time to shed all the broken and irreparable pieces of me

Time to start over

Time to begin again

Or maybe a lifetime is all it takes

To be gifted a new body and mind

And leave all that affliction behind

In the past

Where it belongs

Buried and covered

In someone else’s grave

‘Nobody Told Me There’d Be Days Like These.’ John Lennon

There’s a song by John Lennon

It’s called ‘Nobody Told Me’

I can’t even begin to count how many times I’ve used the lyrics to update my Facebook status

Or to caption my Instagram pictures

And most definitely whispered under my breath

It’s not particularly mind blowing

But it pretty much sums up an average day in my life

In the life of someone with mental illness

In the life of someone with a chronic and incurable illness

I wonder sometimes

If someone had told me that days like this could happen

Would it have prepared me better

Would it have armed me with the tools I need to make it through that day

Would it have given me the weapons I need to face another day

Part of me thinks so

Maybe Lennon was on to something when he lamented that he wasn’t warned for what reality would become

Because that’s the thing isn’t it?

Once upon a time in his life

In my life

Maybe even in yours

It wasn’t this way

Maybe yesterday

Maybe a long long time ago

It was different

Maybe if someone had told me

I would have appreciated it then

Or maybe I could have preserved it better

Like a photograph that keeps life frozen in time

But now I’m stuck in the present

Facing each day blind

And now I’m here

On nights like these

That nobody told me about

With only the song lyrics of a long dead rockstar to keep me company

‘Nobody told me there’d be days like these…

Strange days indeed’

‘What Matters Most Is How Well You Walk Through The Fire.’ Charles Bukowski

Sometimes life just seems so hard

I know

That seems so angst-y

It just that it seems filled with pain and sadness and so much heartache

That sometimes life just doesn’t seem worth it

After all what’s the big reward?

It’s supposed to be in life itself

Isn’t it?

But what if, it’s not?

What if you don’t reap the rewards?

Sometimes life with MS and anxiety and depression feels like this

It feels like all effort

And no great pay off

Maybe it’s just me

I don’t know

Maybe I can’t find happiness in the little things

Or maybe the happiness just isn’t enough

It doesn’t matter

What does matter?

‘What matters most is how well you walk through the fire.’

It matters if you can find the strength to persevere in spite of it all

It matters if you can find the courage to keep going when it feels like there so many more bad days than good

You matter even when you feel like you don’t

And that’s probably the hardest thing to remember

Especially when you keep trying to douse the flames from burning up around you

Instead of walking through them

(A picture of happier days 😏)

“What if all that keeps you trapped in that invisible boxing ring is the belief that you have to keep fighting in order to win?… What will happen to your opponent if he suddenly has nobody who will fight him?” Courtney Perry

Once upon a time

I started having panic attacks

I hated them so vehemently

That I swore to fight them at all costs

I swore to do whatever I had to to to win this battle

So I trained

And so I won many battles

But eventually I grew tired

I grew tired of always fighting

Being on guard 24/7 was crippling

And life was becoming one giant battlefield

One day

The panic attacks came back

They had grown stronger than before

I shrank my world to fit in my condo

Hoping if I stayed off the battlefield

The panic attacks would see I was no longer in the fight

They’d turn around and walk away

And leave me alone

Instead, they found me there

In my safe place

Banging on my doors and windows

Rattling me to my very core

I was so afraid

I hid in the darkness and shrank into the corner

Days passed this way

I could hear them getting louder and louder

And just when my door sounded like it was going to break apart

And my mind was going to snap into a million pieces

I sprang to my feet

I frantically threw open the front door

And yelled for them to fucking do their worst

I screamed that I wasn’t afraid of them

I didn’t like them

They knew that

I never would

But I had grown so tired of living in a constant state of fear

That I realized I’d rather come face to face with them

And if they destroyed me

Well

Then at least it would be over

The funny thing was

That when I opened the door

No one was there

The hall was eerily silent

I was stunned

I looked around

Sure that they were just hiding

To catch me at my most vulnerable

I looked in corners and under crawl spaces

Still I was alone

I was bewildered and shaken

I sank to my knees in the quiet hallway

And I started to cry

Big fat tears rolled down my face

I wasn’t crying because I was afraid

Not this time

This time was different

I was crying because all of this time

All of these years

I had expended so much energy and strength

I had used up so much of myself

When all I had ever needed to do

Was to open that fucking door

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