Project Take Down Paxil 👊

I feel like I should apologize for being MIA lately

But I’m not really sorry

Because it’s for a good reason

It’s for me

Last Wednesday I dropped my Paxil dosage from 40mg to 30mg

I won’t pretend I was totally cool with it

I had a lot of reservations

But I also really wanted to do it

There were some shitty days obviously

Two days when my anxiety spiked to an uncomfortable level and I needed to take more Ativan

Several days where I had dizzy spells that came and went

But I survived

I can tell the following things helped:

Writing affirmations daily

Trying to stay busy

Doing a lot of introspection over the root of my anxiety

Now today I went down to 20mg

Last nite I was really starting to psych myself out of doing this

I kept thinking ‘woah 20 is a big drop from 40’

Then J. reminded me that I was going from 40mg to 20mg

I’ve been on 30mg and am stable there

Now I’m dropping 10mg again

Which I successfully did last week

I needed to hear that

It helped ease my fear

I made him write it out so I could print it

I’ve already reread it a few times

Along with some other affirmations

I need to keep reminding myself that I’ve already dropped 10mg and while unpleasant

I survived it

I’m still safe

I’m still here

And most of all

If I did it once

I CAN most certainly do it again

Changing the narrative helps

Taking the unknown and making it something familiar

Removes the fear

For anyone else out there struggling with anxiety

If I’ve got this

You’ve got this

Hard and uncomfortable as it is

We have what makes people into warriors

I’m going to remember all of the difficult things I’ve been through in my life

I’m scrappy

I am a fighter

Think of everything you’ve survived

I hope you keep fighting

Because I will too

That’s what warriors do

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The Odds

I find myself thinking in terms of:

When I get better

For example

When I get better, I’ll change my Paxil

Or

When I get better, I won’t feel so down

Or

When I get better, I’ll finish my degree

The list goes on and on

Sometimes it’s things exciting like travel

More often than not

It’s simple things

Like

When I get better, I’ll go for walks with Joey and my dogs

Ultimately

It always ends with me waiting for a time when I’ll feel better

Always waiting for a time that may never come

Then I think to myself

What if this is as good as it gets?

I mean

Really

And what if it is?

Does that mean I throw in the towel?

Give up

Admit defeat

And then what?

So I started thinking tonight…

And bear with me

This is wild

….

What if I just stop waiting?

…..

Dun dun dun

What if I stop waiting for a future that might never come?

What if I just start living like this is as good as its ever gonna get?

There is something so incredibly freeing about that

It’s difficult when the people around you encourage you to think of how much better things can get

As well intentioned as it is

It just doesn’t help

I’m so fucking sick and tired of waiting

I’m so tired of hoping

Fuck waiting and hoping and wishing

Maybe it’s time that I just start living

For today

I mean…Yeah maybe things will get better

But I just don’t want to waste my time waiting for something that is only possible (What is possible )

I like the odds of probable (What is probable)

It is probable (because there is evidence to support it) that tomorrow I will wake up

And feel as shitty as I do right now

But instead of going back to bed and waiting for a better day

I’ll just keep going

I’ll step out into the world and I’ll still feel shitty

But at least I will have fucking done something

And maybe for this to stick

I’ll have to keep reminding myself every day

That my life deserves a fighting chance

Doesn’t it?

That in order to really live

I need to remove both feet from inside of the grave

Any other way

And it’s just not probable

Radical Self Acceptance

(This was from my MS support group I chaired last week)

Fighting reality only creates suffering. While pain is inevitable in life, suffering is optional. “And suffering is what happens when we refuse to accept the pain in our lives,”

Close your eyes and think about being diagnosed with MS

Think about the difficulties you encountered

Think about the hurt, pain and suffering you’ve experienced because of it

Think about all the medications and treatments you’ve tried

Think about how many times you’ve gotten your hope up for some miracle cure only to be let down

Think about all the time you’ve been angry, depressed or lost because of having MS

Now open your eyes.

Look around

You still have MS

So does everyone else in this room

Nothing has changed

simply because you deny it exists.

It is still there, waiting for you to deal with it.

“When you open yourself up to accepting the present moment precisely as it is, with no judgments, you are free to look at all of those puzzle pieces of the present moment and start to piece them together. “

What if instead of having all of that, you simply decided to radically accept your reality that is having MS?

Acceptance isn’t giving up

It isn’t resigning yourself to the illness

It is simply accepting that whatever is happening is happening

Acceptance is about letting go of the person you thought you were and the life you thought you had and making the most of the one you actually have

Some helpful strategies to practice radical self acceptance:

Acknowledge and learn how to cope with negative thoughts and feelings

Rewrite your story

Find activities that you enjoy

Spend time with the people you love and that make you happy

Note:

I’m not even close to being there yet…but I want to be

‘How lucky I am to have something that makes saying goodbye so hard?’ Winnie the Pooh

Some days the light is so bright that all I can do is immerse myself in it

The pain I usually feel is overwhelmed by the natural beauty the light bestows

Upon me

And all I can do is worship at its sight

Like a pilgrimage to a holy site

I sit in bask in what can only be described as incandescent

The way it heats my face and my body is a reminder of how alive I am in this moment

When I turn away

I am reminded how fleeting beauty can be

And how this moment may not last forever

And there might be a time when I can no longer see the beauty right in front of me

But memories fade and I want proof that this moment existed

I take a picture and write a poem

And hope that something gets imprinted onto my heart

So that I may be able to conjure up these feelings on the days when I just can’t find the light no matter how hard I try

It only looks hopeless when you can’t see an alternative

No matter how hard you try

Even trying on a different perspective for size

Still the hopelessness persists

This is what scares me

I remember during the height of my worst moments with anxiety

Thinking to myself that the rest of my life would be filled with days of panic attacks and days where I waited for the panic to attack

It would never end

That thought still haunts me

Part of the crux of my anxiety is the feeling of being trapped

Not necessarily in the physical sense of the word

But even where situations feel like I cannot control the outcome

Where I cannot extricate myself

Like a panic attack itself

Or being drunk

Or high

Apparently my depression isn’t much different

The darkest cloud hovers when I cannot see a way out of an empty thought, moment or situation

What starts as a fleeting worry morphs

And I begin to think in terms of ‘always’ and ‘forever’

It’s frightening because it feels like even the sanest part of your brain cannot conjure up a tidbit of hope to tide you over

Not even a little breadcrumb for you to follow towards hope

Life is funny that way

It gives you this stadium of life

And throws these curveballs at you

But it doesn’t provide you with the bat, the helmet or protective gear

Sometimes I scratch my head and wonder how some people win

I question the authenticity

Maybe they cheated

And everyone knows

That the games been rigged in their favour

And I’m just not in on the secret

‘I don’t know who I am or maybe I do know who I am and I just don’t want to be her anymore.’ -G.F

Feeling a little lost

I know

Nothing new

Since stopping the Paxil project

I feel like I have little purpose

I’m still off of work

Which basically means

I’m sitting on my ass doing a whole lot of nothing

My return to my role in the Section program is still unclear

Work has had my medical documentation for over a month but I haven’t heard anything on that end

Not a ‘get well soon’

Or ‘are you still alive?’

All that aside the million dollar question is what will happen if and when I return

I don’t know if they think I’m capable of returning to my position

They have the authority to move me into a different position

That’s weird isn’t it?

I’ve been made aware that it’s within their legal rights

But I no longer have a say where I work

Somewhere along the way

I no longer have control over a huge part of my life (my career)

I don’t know if it’s MS that I owe that to

Or my ongoing struggles with mental illness

Or an amalgamation of all the above

Each taking a little piece of my ability to be a ‘good’ employee

Of course there’s an option to leave this job and look elsewhere

But I would only be kidding myself

If I were to say that it would be different in another job

I mean

At first it would be

I do well in interviews

Maybe they’d hire me

Things would go well

I’d exceed their expectations

And then

The sick time would start accruing

And instead of them looking at me like I’m some slacker

I’ll explain my illnesses

And then

They’ll understand

For months or maybe even a year

But eventually

The rhetoric remains the same

Angela is an excellent worker…when she’s here’

Call me pessimistic

But I think it would make a memorable epitaph on my grave

Maybe, just maybe…

I’ve started Project Taper Paxil on Sunday

I worked myself into a frenzy anticipating what might happen

I took an extra Ativan to get some peace

I saw my doctor yesterday and he reminded me that I could have put off starting Project Taper Paxil for another week

But I didn’t

Evidence to support the theory that I’m stronger than I think

The doctor mused that it’s been a tough year for me

I guess it has, hasn’t it?

I can pretty much unequivocally say this is not where I thought I would be at this point of my life

At 36 years old

I had hoped for something very different

And that’s even with several revisions

But what do you do when that path leads you to a dead end?

If you’re like me,

You might spend too much time retracing your footsteps over and over again

Trying to figure out how you got it so damn wrong

Did you miss a turn?

Did something lead you astray?

Or were you just unlucky enough to end up on that path to nowhere?

If you’re like me,

You don’t have answers to any of those questions

But you just can’t fathom starting all over again

Finding a new path to walk

Wishing that this new path will be the right one

Hoping that it won’t become another dead end

But

Maybe this time you won’t care about the destination

But

Maybe this time you’ll be content with the journey

And

Maybe this time it will be exactly what you needed all along

And

Maybe, just maybe

You’ll be happy

At last